OUR VISION
Our vision is to remove the financial Barries that stand between children with rare disease and the care they urgently need. We help families pursue second options, access out of state specialists and afford critical medications.
How we help families
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We help fund second opinions from leading specialist.
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Travel assistance for out-of-state medical care
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Critical medications not covered by insurance.
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Access to treatment options families may not otherwise be able to pursue.
We foster partnerships with researchers, healthcare professionals, and communities to amplify our impact and accelerate breakthroughs.
We want to turn "there is nothing more we can do" into "here is the next step"
We champion the needs of children with rare diseases, working to raise awareness and influence policies that enhance access to care and support.
Our vision is to make sure no family is forced to stop fighting for their child because of cost, distance or lack of access to care. We exist to help bridge the gap when insurance falls short.
