The Pediatric foundation for rare diseases was born out of our families darkest moment. After our son was diagnosed with Metachromatic Leukodystophy (MLD), we were suddenly thrown into a world of fear, uncertainty, and impossible decisions. We were told there were no options and no hope. But as parents, we refused to stop searching for answers. What began as a fight for our own child became a mission to help other families facing rare and devastating diagnoses find support, access care and hold on to hope.
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OUR REACH
The Pediatric foundation for rare diseases has a global presence, with children from around the globe benefiting from our initiative.
ABOUT OUR FOUNDATION
We are committed to helping families access the care their children need by funding second opinions, critical medications and life changing treatments that are often not covered by insurance. Our goal is to help pave the way for children with rare and serious medical conditions to receive every possible chance at care, hope and healing.
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Our mission is to fund research, innovative therapies, and critical medical support for children battling rare diseases. When families are met with fear and uncertainty, we exist to offer something stronger: action, access and hope.
